I can honestly say I have zero clue where the last three weeks of my life escaped to.
The days are lumped together, a hazy mess of stress and uncertainty, exhaustion and confusion. But I am happy to say that my dad is out of the hospital and home! It wasn’t the easiest road getting there, and he still has some tough days ahead of him, but he’s out.
We are beyond lucky and grateful that my dad’s case of Guillain-Barre did not progress into his lungs and that he responded so well to the IVIG infusions.
Having a family member in the hospital is a wild ride. The misinformation was maddening, the length of time it took us to get answers was infuriating. Did you guys know that in the course of two weeks my dad was in the hospital he was misdiagnosed with THREE different things?
-A fractured neck (maybe it wasn’t GBS? Maybe he had a broken neck as the radiology tech told him he saw on dad’s scans)
-Possible meningitis (this one is still strange to us and a bit upsetting. Dad was growing gram-positive cocci in his spinal fluid. It was ruled a contaminate. What kind of LPs are they doing there?!)
-And finally possible kidney cancer as dad had a renal ultrasound done and a 2 inch mass was found on his left kidney. He had a CT scan done right away, but not to worry, the urologist came in more than 24 hours after the CT and said oh, the US was probably read wrong, the CT scan didn’t show anything. But let’s reimage in a couple months to be sure. WTF?!
So, you can see why the two weeks were a blur. It seemed we’d get a couple good days of progress and then something else would pop up.
Luckily, we kept our humor. One night we had a good laugh over the trifecta shit-i-cane Dad almost was diagnosed with. Paralysis, meningitis, cancer?! Winning at life right there.
We were mostly well taken care of, though. The rehab doctor and therapists at TIRR were amazing. Their rehab program is top notch and I would recommend it to anyone. Dad will continue there in their outpatient program for the foreseeable future.
He’s doing well, but his bladder nerves were damaged by the GBS, leaving him straight catheterizing himself every 4-6 hours. It’s not pleasant, but he’s been a trooper about it. Some days are better than others. Some days he feels great, some his numbness ramps up and he feels extremely weak. We were warned about this, but I can’t imagine the feeling of your body physically failing you.
I’m back in Dallas now. Beyond the couple blog posts I wrote while down in Houston, I didn’t accomplish much in the writing department, which stressed me immensely. But, I guess it was necessary to take a break and focus on the family. I am so happy that I was able to be there the entire time Dad was admitted. Still, tears fell freely when it was time to leave.
My book is out to publishers, 22 to be exact. Some answers to their interest are starting to trickle in, all exciting things ahead! When I know more, and I’m allowed to, I’ll update then.
I’ve been slowly working on my next book, and hoping to really dive in in the weeks and months to come. I’m setting a goal for myself and telling you all here so I can be held accountable. I’d like to have my first draft completed by Christmas. Whoa. A little over two months, let’s see how this goes!
My dear friend Christine is getting married this weekend, and I am so excited for it. I love when all of our friends come together. They all can seriously make me laugh like no other. Next week we go to Seattle for an extended weekend with Jimmy’s family. I haven’t been in many years, and am eager for the cooler fall temperatures and hopefully some delicious fresh fish!
Jimmy is good, working hard. Gus Gus is good, lazy as ever. I missed the snuggle bug while I was in Houston!
How’s everyone’s October going so far? Anything new in your world?
Again, thank you, thank you to everyone who reached out to me during the time Dad was hospitalized. I probably missed responding to many, sometimes the effort was simply too much. But I hope you know how much it meant to me.
Until next time,
P.S. Random info coming at you… if you haven’t watched Mindhunter on Netflix, You. Are. Missing. Out. Agh, it is so great and deliciously creepy and also informative. Just in time for Halloween season! It’s based on a true story about the first FBI agents that created the Behavioral Science Unit and began studying serial killers. Seriously, go watch.